suggested resources
Websites
- CurePSP: www.psp.org
- Parkinson’s Resources: https://www.parkinsonsresources.org/
- Davis Phinney Foundation: https://davisphinneyfoundation.org/what-is-psp/
- Alzheimer’s Association: https://www.alz.org/
- Powerful Tools for Caregivers: www.powerfultoolsforcaregivers.org
- Rose Elder Law - Events & Free Seminars - Rose Elder Law
- Five Wishes: www.fivewishes.org
- EOLCOR – End of Life Choices Oregon: www.eolcoregon.org
- Death With Dignity: www.deathwithdignity.org
Books
● The Art of Dying Well, by Katy Butler
● The Gift of Caring – Saving Our Parents and Ourselves from the Perils of Modern Healthcare, by Marcy Cottrell Houle, MS and Elizabeth Eckstrom, MD, MPH, MACP
● The Dementia Handbook, by Judy Cornish
● Dementia Facts & Information, by Fredrick Earlstein
● Beating the Dementia Monster, by David H. Brown and Vaishali S. Phatak, PhD.
● Last Dance at the Savoy: Life, Love and Caregiving for Someone with Progressive Supranuclear Palsy, by Kathryn Leigh Scott
● Being Well with Chronic Illness, by Kat Hill & Nancy Peate
Articles
- “Best Practices in the Clinical Management of Progressive Supranuclear Palsy and Corticobasal Syndrome: A Consensus Statement of the CurePSP Centers of Care” https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2021.694872/full